Tuesday 2 June 2009

Outside is forever (nearly!!)

Well things are really starting to move now!
Doug had his first two nighter at home last week-end and enjoyed it greatly:-) Even better, Nick, Heike, Jules, Malky and Clare took Doug out for the afternoon on Sunday and after perambulations along the foreshore, ended up in the local hostelry!!! Talk about breaking the mould!! Doug REALLY enjoyed the afternoon ......... thank you folks so much.

No sooner had he 'checked back in' than a rather dishy young doctor (female I am assured) came along to take out his PEG feeding tube! (Monday) I think we were all a bit concerned about this, but, according to Doug, it was just a question of grabbing a hold of the tube and giving it a quick heave and ... pop ... out it came. Huummmm Not sure it was really that simple but ......
Apparently the outside hole heals very rapidly (a day or so) and the inside one (in the gut?) seals almost immediately. I'd still be a bit worried about the leaking inner tube thing though they know what the're about.
So - now all food and liquids are taken orally!!!! Liquids still have to be thickened because of the swallow reflex deficiency but fortunately Doug has taken a liking for Lemon and Barley water which he drinks by the litre!! Anyone tried thickening gin and tonic???????

To top it all off we now have a discharge date for Doug. 10th June is the big day!
From that point on he'll be at home, under the care of Mom and Pop, aided and abetted by the Community Rehab Team who, I am told, will really be working him hard.
The 10th will be out for visiting what with the transfer followed by the Rehab Team visit.

So I guess, for those of you who work in and around the town centre, visiting could be a little less easy; however, on the plus side we'll not be constrained by hospital visiting hours and the surroundings are certainly more congenial!! Clearly we'll have to work around the Rehab schedule (whatever that turns out to be). If the weather keeps up remember to bring sun cream so you can all sit out in the sunshine!!

Dougs mood certainly seems much more positive now although he still has trouble with the balance issue and therefore with the business of walking and standing.
He has started the process of applying for 'a place of his own' through Edinburgh City Council although that is likely to be a fairly long drawn out process given both his particular requirements for wheel chair access and the relative shortage of such housing. He tells me he is very apprehensive at the idea of living on his own but hopefully his fears will diminish as he becomes more confident around the house.
He has also applied for a Blue Badge that will make going anywhere just that little bit easier and a Taxi Card that gives discounts on cab fares around the city.

We have still not heard anything further about the PFO business (closure of the hole in the heart) and I hope this is simply due to pressure on available resources. Were it otherwise I'm sure we'd have been advised.

The upcoming week-end (5th; 6th and 7th) Doug will be at home - Friday lunchtime till Sunday evening, so if you want to pop in for a visit in the afternoon, give me a bell first just to make sure allus OK.

Iain

1 comment:

Anonymous said...

fantastic news dougie, iam so happy to hear how well you have been doing mate. keep that chin up and enjoy the new abode.

stay strong

derm