Today was not one I'd hope to repeat I'm afraid. Douglas was really down, very, very frustrated and quite angry at his view of his progress. So much so that the bronchoscopy was in doubt because he simply refused to agree to it. Sheena and I spent a couple of hours this morning talking with him and eventually succeeded in persuading him to have it.
The good news is that it confirmed the improvement in his lung condition (the amount of gunge found was very significantly less that was seen on the CAT scan on Monday) and the docs did not believe it was necessary to do much suction at all since this would have required the use of a mild sedative (which they wanted to avoid given his state).
This was all explained to Douglas but it did little to lighten his mood.
By this evening he seemed to have quietened a bit and we can only hope this carries him through the night.
It's so heart rending when he says that all he wants is to go home and we have to tell him its not possible right now.
On a brighter note it is true that he has required very much less suction in the last 36 hours than ever before. We hope and pray this improvement continues.
Iain
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6 comments:
Hi Dougie,
Good to see you the other day and hear about all your progress. Also good news about the improvement in your lungs.
Be positive and keep up the hard work in physio,
Heather
Hey Dougie. Like your Mum and Dad, I wish I could do more than just say or type words.... :-((
But you know what life is like - getting through the toughest days makes the biggest difference (even though it doesn't feel like it at the time).
Every tough day (physically or emotionally) is still one step closer to getting out.
We're thinking of you buddy, keep going...
Feek'n'Saz.
Right, trying again :-)
Hope this cheers you up...
http://keithsheringcom.spaces.live.com/blog/cns!3B30304D8DCDF080!213.entry
Feek'n'Saz
Dougie - hang on in there my lovely friend. I know it must be SO frustrating and tiring at times but every small step of progress you make means you're closer to getting to go home! It will happen!!
Sorry haven't been in recently to see you all - was away on a family weekend in the North York Moors (Ki came up too despite Jess being in Myanmar and he passes on his best wishes to you too) but will try and get in this week. I think of you every day and hope you're getting my positive vibes. Jules xxxxx (this message includes a HUGE hug for you Dougie - a 'Dougie-style' one - and for you too Iain and Sheena)
dougie,
stay strong mate, you have to have the down days to make the good days better.
iam hoping you will be home soon
cheers
Derm
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